LinMM Posted July 29, 2014 Share Posted July 29, 2014 Fingers crossed for the sinus rhythm to kick in then. It is still early days. Yes Life can be like that unfortunately .......these all or nothing times! Nobody's been ill for months and months and then everyone gets something. Or nothing goes wrong with household equipment for years and then three things pack up at once!! Very annoying!! Anyway still thinking of you and your family and glad ENB DD got some joy last week!! 2 Link to comment Share on other sites More sharing options...
Billyelliott Posted July 29, 2014 Share Posted July 29, 2014 Oh Regattah , what a trial ! Well done for keeping it all together , but don't forget to take time for yourself to recharge the batteries - praying or sinus rythmn ! 1 Link to comment Share on other sites More sharing options...
Fiz Posted July 29, 2014 Share Posted July 29, 2014 Oh Regattah, I feel for you! Life never seems to throw just one curve ball. It throws several. I pray you young daughter's sinus rhythm kicks in without needing a pacemaker and your son recovers quickly too. Hugs and love to you all. x Link to comment Share on other sites More sharing options...
porthesia Posted July 29, 2014 Share Posted July 29, 2014 Hoping everything sorts itself out soon and things get back on an even keel. xx Link to comment Share on other sites More sharing options...
pastel Posted July 29, 2014 Share Posted July 29, 2014 Thinking of you and wishing you all the best. Link to comment Share on other sites More sharing options...
Amethyst Posted July 29, 2014 Share Posted July 29, 2014 Hope everything goes well for you all x Link to comment Share on other sites More sharing options...
Jan McNulty Posted July 29, 2014 Share Posted July 29, 2014 Just wanted you to know Regattah that you are all still in my thoughts. I do hope your daughter's blips are behind her now. Jxx Link to comment Share on other sites More sharing options...
Melody Posted July 29, 2014 Share Posted July 29, 2014 All the best, Regattah; I hope DD's heart sorts itself out. Hang in there, and look after yourself as well as everyone else. Link to comment Share on other sites More sharing options...
Legseleven Posted July 30, 2014 Share Posted July 30, 2014 You and all your family are still in my thoughts and prayers x Link to comment Share on other sites More sharing options...
sblick Posted July 30, 2014 Share Posted July 30, 2014 Have not commented before but have been reading and keeping up! Hope everything works out! I have a son with a life limiting condition and a DD and know how difficult it can be and know exactly what u r going through! My DD starts at Ballet Theatre UK school in September and has been very hard over the years! Wish u all the best and private message me if u want to off load! x x 3 Link to comment Share on other sites More sharing options...
Lisa O`Brien Posted July 31, 2014 Share Posted July 31, 2014 Have not commented before but have been reading and keeping up! Hope everything works out! I have a son with a life limiting condition and a DD and know how difficult it can be and know exactly what u r going through! My DD starts at Ballet Theatre UK school in September and has been very hard over the years! Wish u all the best and private message me if u want to off load! x x Oh sblick, I am so,so sorry to hear about your son. I am extremely fortunate that both my son and myself have good health,and we do not know know anybody with a serious medical condition. How lucky we are.! We should treasure our lives,as indeed they are precious. 2 Link to comment Share on other sites More sharing options...
Regattah Posted July 31, 2014 Author Share Posted July 31, 2014 Thank you sblick! It's funny how you just find resources to keep going, isn't it? I try to take one day at a time which is the only way I could handle everything. Congrats on your DD's place. She's done really well. I am looking forward to hearing everyone's reports on the school from September as it's sixth form audition year for older DD next year! 3 Link to comment Share on other sites More sharing options...
Regattah Posted July 31, 2014 Author Share Posted July 31, 2014 I had a request on PM for an update, so here goes! Little DD is recovering well in herself. She's been off morphine for a few days and has been completely off oxygen now for a couple of days. She's up and about the ward, even though she has to carry not one but three monitoring boxes around with her. Wires and stickers everywhere! We are still waiting to see if her heart will go into sinus rhythm without fitting an internal pacemaker and we've been told we have 4 more days for it to change. If she does need a pacemaker it will probably be put in next Friday and will unfortunately need to be a bigger op than a typical pacemaker op would be. Due to her bizarre anatomy they would have to go in from below and it would have to be open-heart surgery, so recovery time would be longer. We have now moved from the High-Care bay into our own side room, so have lost crying babies and gained a TV and an en-suite! I don't know how long it will last though; if a teenager or anyone needing isolation care comes along we will be turfed out! I think DD has only been assigned it at the moment as she is the oldest here for the time-being. 16 Link to comment Share on other sites More sharing options...
Anjuli_Bai Posted July 31, 2014 Share Posted July 31, 2014 I read this with amazement at your child's emotional strength - and yours. Let me add my prayers to yours for a continuing improvement. 7 Link to comment Share on other sites More sharing options...
Fiz Posted July 31, 2014 Share Posted July 31, 2014 You will all be in my prayers, Regattah. x 4 Link to comment Share on other sites More sharing options...
Regattah Posted August 25, 2014 Author Share Posted August 25, 2014 Hi everyone Just to give you an update on my little one, it's now a month since the op and she's doing so well. She looks great (pink!) and has so much more breath. When she had a clinic appointment a couple of weeks ago her ECG showed her heart in sinus. Obviously that's just a snapshot and we don't know if it stays that way all the time, but her doctors are really thrilled with her. She's desperate to start ballet again and complains constantly because she can't do cartwheels for 12 weeks post-surgery! 15 Link to comment Share on other sites More sharing options...
Anjuli_Bai Posted August 25, 2014 Share Posted August 25, 2014 Congratulations and continued good news from now on. Link to comment Share on other sites More sharing options...
drdance Posted August 25, 2014 Share Posted August 25, 2014 Oh Regatta, that's great news to hear! You have my best wishes for a successful continued recovery. And thank you for keeping us all updated! Link to comment Share on other sites More sharing options...
Anna C Posted August 25, 2014 Share Posted August 25, 2014 Thanks so much for the update, Regattah. Wonderful news! Keeping everything crossed that all goes smoothly from now on. Link to comment Share on other sites More sharing options...
pastel Posted August 25, 2014 Share Posted August 25, 2014 Very happy to read your update. I have been wondering about your dd. We are travelling and have limited wifi, so haven't done much that wasn't super urgent - but really kept meaning to ask about her. Best wishes Link to comment Share on other sites More sharing options...
DancingDays Posted August 25, 2014 Share Posted August 25, 2014 Fantastic news....would love to hear that she's doing those cartwheels again soon :) Link to comment Share on other sites More sharing options...
LinMM Posted August 25, 2014 Share Posted August 25, 2014 Great news Regattah hope she will be in her first ballet class very soon!! Link to comment Share on other sites More sharing options...
sarahw Posted August 25, 2014 Share Posted August 25, 2014 Fantastic- kids are amazing at bouncing back aren't they? So pleased to hear that. Link to comment Share on other sites More sharing options...
Jan McNulty Posted August 25, 2014 Share Posted August 25, 2014 Fantastic news Regattah. Thanks so much for letting us know how your DD2 is getting on. Very best wishes to all of you. Jxx Link to comment Share on other sites More sharing options...
Melody Posted August 26, 2014 Share Posted August 26, 2014 That's really good news; I hope things continue to go well. Link to comment Share on other sites More sharing options...
Billyelliott Posted August 26, 2014 Share Posted August 26, 2014 Wonderful news !! Link to comment Share on other sites More sharing options...
Fiz Posted August 26, 2014 Share Posted August 26, 2014 Great news! Link to comment Share on other sites More sharing options...
alison Posted August 26, 2014 Share Posted August 26, 2014 So good to hear. I think I'll edit the title of this thread so that people don't think it's still urgent 2 Link to comment Share on other sites More sharing options...
Regattah Posted August 26, 2014 Author Share Posted August 26, 2014 Thank you everyone! 2 Link to comment Share on other sites More sharing options...
LinMM Posted August 26, 2014 Share Posted August 26, 2014 Perhaps you could let us know when she does do her first cartwheel or gets to some sort of Dance class even if it's not initially ballet 3 Link to comment Share on other sites More sharing options...
2dancersmum Posted August 26, 2014 Share Posted August 26, 2014 So glad to hear of your DDs progress and hope she is soon able to get back to all the activities she enjoys Link to comment Share on other sites More sharing options...
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