primrose Posted August 3, 2018 Author Share Posted August 3, 2018 1 hour ago, valentina said: So happy to see how much progress you have made already! You have been very courageous. Thankyou I’m just a mum doing the best I can in the most horrific circumstances 2 Link to comment Share on other sites More sharing options...
Stiletto Posted August 4, 2018 Share Posted August 4, 2018 I am so sorry to read this . I have signed the petition. Wishing you all the best. Link to comment Share on other sites More sharing options...
primrose Posted August 4, 2018 Author Share Posted August 4, 2018 Thankyou so much did you get your email to verify your signature x Link to comment Share on other sites More sharing options...
Duck Posted August 4, 2018 Share Posted August 4, 2018 I was deeply shocked when I read the article in The Guardian, shocked about what happened at the hospital and in the courtroom. I am lost for words. Fiz's post just above pinpoints what I think of events. I am not a UK citizen/resident and am thus unable to sign the petition unfortunately. Wishing you lots of strength, courage and stamina to continue moving this forward. My thoughts are with you in this difficult time. 2 Link to comment Share on other sites More sharing options...
primrose Posted August 4, 2018 Author Share Posted August 4, 2018 Thankyou for your kindness Link to comment Share on other sites More sharing options...
Jan McNulty Posted August 7, 2018 Share Posted August 7, 2018 This article is well worth a read: http://chopsybaby.com/magazine/oliver-mcgowan-the-bristol-teenager-we-must-remember/ 4 Link to comment Share on other sites More sharing options...
porthesia Posted August 17, 2018 Share Posted August 17, 2018 At a loss for words, signed Link to comment Share on other sites More sharing options...
primrose Posted August 17, 2018 Author Share Posted August 17, 2018 Thankyou so much for your support. Did you get your email to verify your signature x Link to comment Share on other sites More sharing options...
alison Posted August 18, 2018 Share Posted August 18, 2018 Primrose, I spotted a mention in the Evening Standard about a charity called Ambitious About Autism: another avenue to try, if you haven't already? Link to comment Share on other sites More sharing options...
porthesia Posted August 18, 2018 Share Posted August 18, 2018 I got the email to verify,and I've just found the link to Facebook so I've shared there x Link to comment Share on other sites More sharing options...
Emilie Posted September 22, 2018 Share Posted September 22, 2018 Every day must be clouded with sadness as your family come to terms with your tragic loss of Oliver.I hope you are coping and proud of pushing forward change for the better. 2 Link to comment Share on other sites More sharing options...
primrose Posted September 22, 2018 Author Share Posted September 22, 2018 Thankyou nothing can ever take away the emptiness and sadness at losing Oliver. Oliver has driven me forward to make essential changes to our laws. I am now keeping a close eye on exactly what that mandatory training will look like and if it’s fit for purpose 2 Link to comment Share on other sites More sharing options...
Jan McNulty Posted September 22, 2018 Share Posted September 22, 2018 You can keep up with the Justice for Oliver campaign if you are on Facebook: https://www.facebook.com/paulamc007/ 2 Link to comment Share on other sites More sharing options...
Dance*is*life Posted September 25, 2018 Share Posted September 25, 2018 I was absolutely shocked by your story, Primrose. I have signed and sincerely hope that your tragedy will lead to a positive outcome for the benefit of others in similar situations. One of the first things doctors ask is if the patient is allergic to any medicine - so why would they ignore this? I am so sorry for your loss - may you have the strength to keep up the fight. Link to comment Share on other sites More sharing options...
Mummy twinkle toes Posted September 25, 2018 Share Posted September 25, 2018 Hi Primrose, I thought this organisation may be useful for you. It is run by relatives who lost their brother. He had learning disabilities and unfortunately died partly due to neglect. They challenged the Trust involved so maybe able to help you there. They also educate training health professionals on caring for patients with learning disabilities. They have implemented care bundles in Wales and something similar could be introduced in England in Oliver’s name. Their website is: http://paulriddfoundation.org/pauls-story/ Hope this helps. Xx 2 Link to comment Share on other sites More sharing options...
alison Posted October 16, 2018 Share Posted October 16, 2018 I've received an email to say that this petition is going to be debated by Parliament on 22nd October. Is this your desired outcome, primrose? If so, then congratulations to you and everyone involved. 4 Link to comment Share on other sites More sharing options...
primrose Posted October 16, 2018 Author Share Posted October 16, 2018 Thankyou nothing can ever take away the emptiness and sadness at losing Oliver. Oliver has driven me forward to make essential changes to our laws. I am now keeping a close eye on exactly what that mandatory training will look like and if it’s fit for purpose i am am very pleased. It hopefully means that doctors and nurses willhave mandatory training in autism and learning disability awareness and this will save lives. 11 Link to comment Share on other sites More sharing options...
Billyelliott Posted October 16, 2018 Share Posted October 16, 2018 I also had this email and shouted Hurrah! may it bring lasting change xxx 1 Link to comment Share on other sites More sharing options...
primrose Posted October 16, 2018 Author Share Posted October 16, 2018 Thankyou so much xx Link to comment Share on other sites More sharing options...
glissade Posted October 19, 2018 Share Posted October 19, 2018 I was shocked to learn recently that Adult Psychiatrists apparently receive no training in autism. It is only the Psychiatrists who choose to specialise in Child and Adolescent Psychiatry after their initial course who receive training in autism. No wonder that there is so little awareness in Adult Services! I strongly believe that training in autism should be made compulsory for Psychiatrists as well as other healthcare professionals. 3 Link to comment Share on other sites More sharing options...
primrose Posted October 19, 2018 Author Share Posted October 19, 2018 Oliver’s petition will be debated in parliament on Monday 22 October. We will be asking for the GMC and deans to take ownership of the training as doctors are the decision makers. Most doctors and nurses never receive any training in autism and learning disability awareness. Culture has to change. 11 Link to comment Share on other sites More sharing options...
CeliB Posted October 22, 2018 Share Posted October 22, 2018 (edited) BBC news link just popped up on my facebook feed Fabulous to get this coverage - onwards and upwards I hope... x https://www.bbc.co.uk/news/av/uk-politics-45941597/a-mother-s-campaign-for-autism-care-equality-for-all Edited October 22, 2018 by CeliB 6 Link to comment Share on other sites More sharing options...
Fiz Posted October 22, 2018 Share Posted October 22, 2018 I’ve been thinking about you all all over the weekend. How did it go today, Primrose? x Link to comment Share on other sites More sharing options...
primrose Posted October 22, 2018 Author Share Posted October 22, 2018 I think it was a very powerful emotional debate. They did say that autism would form part of the mandatory training which is excellent 12 Link to comment Share on other sites More sharing options...
Anon2 Posted November 5, 2019 Share Posted November 5, 2019 Just seen on BBC breakfast that mandatory autistic training has been announced by the government for NHS staff. @primrose has fought hard for this in memory of her son and others who have not had their needs heard and responded to. 7 Link to comment Share on other sites More sharing options...
Karen Posted November 5, 2019 Share Posted November 5, 2019 It was good to see this on BBC breakfast today. I hope that Primrose and family are proud of their great achievement to support those with autism. I hope the training makes a difference to the treatment of young people who cannot always speak up for themselves. 6 Link to comment Share on other sites More sharing options...
Fiz Posted November 5, 2019 Share Posted November 5, 2019 My eldest daughter has recently asked to go back on ADHD medication as she is certain that ADHD is at the bottom of her constant depression. Her G.P. can’t prescribe ADHD medication without a consultant referral and and a diagnosis of adult ADHD. Okay, please refer her. There was a nine month wait. We’re actually lucky that there is a new adult ADHD clinic in Lincolnshire. She finally saw the consultant a fortnight ago. She wanted my daughter off all meds and anything containing caffeine. She can barely function at the moment. Hopefully it will be long before she is back on ADHD medication as the 1995 diagnosis was confirmed. The consultant also says my daughter has a degree of PTSD - from school! I didn’t know until much later how appallingly her so called peers had treated her at a mainstream school because she was on ADHD medication. She never had a proper psychiatric evaluation because “she is clever” - their words. Anyway, all this and Oliver’s tragedy have made her decide that when she finally gets back on ADHD medication she is definitely going to push to go into mental health nursing or counselling. The recent disclosure of how a teenage girl with autism has been treated, also a local suicidal teen and the various stories of young friends or friends with teenagers has convinced me that this country does not have proper mental health care for its patients. 4 Link to comment Share on other sites More sharing options...
Jan McNulty Posted November 5, 2019 Share Posted November 5, 2019 It was very good news indeed to hear that all Primrose’s campaigning has led to the introduction of mandatory training. Best wishes to your daughter Fiz. 3 Link to comment Share on other sites More sharing options...
alison Posted November 5, 2019 Share Posted November 5, 2019 Oh Fiz This country's mental health system sucks in so many respects. Not only in the length of time it takes to get seen, by which time the situation may be so much worse, but I've seen so many instances of people's benefit applications being turned down or limited because they happen to be intelligent or well-educated or whatever - this certainly counts against you in an assessment, in the same way that being "kempt" (the opposite of unkempt) and well-presented do - and the assessor therefore assumes they don't have a problem. My heart goes out to your whole family - my former downstairs neighbour had a child with ADHD, so I have some idea of what you go through in such cases. 3 Link to comment Share on other sites More sharing options...
Picturesinthefirelight Posted November 5, 2019 Share Posted November 5, 2019 We recently contacted our GP about some difficulties ds was having (he is autistic and severe anxiety was causing alarming behaviours). The GP said if it happens again call the police and they will arrest him!!!! Ds is 15 years old! Link to comment Share on other sites More sharing options...
Sim Posted November 5, 2019 Share Posted November 5, 2019 Sending very best wishes to your whole family, Fiz, as you are all going through this together. I do hope your daughter gets the help and care that she needs in order to bring about recovery or amelioration. xx 1 Link to comment Share on other sites More sharing options...
alison Posted November 5, 2019 Share Posted November 5, 2019 Pictures, it sounds as though your GP should be one of the first targets of the new policy If GPs don't understand, who will? 3 Link to comment Share on other sites More sharing options...
Anon2 Posted November 5, 2019 Share Posted November 5, 2019 55 minutes ago, Picturesinthefirelight said: We recently contacted our GP about some difficulties ds was having (he is autistic and severe anxiety was causing alarming behaviours). The GP said if it happens again call the police and they will arrest him!!!! Ds is 15 years old! Sadly this is all too common. A friends husband who’s a police officer regularly has to ‘arrest’ a minor having psychotic episodes as it’s the only way to get him some immediate help. We had to pay for private consultation to get the help my dc needed. It was a struggle but our concern was he wouldn’t survive GP inactivity or NHS waiting lists. It was worth every penny although GP wasn’t keen to read the 3 page report from psychiatrist that detailed diagnosis and treatment. We ended up paying for the recommended therapy too. Link to comment Share on other sites More sharing options...
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